UN Special Envoy for HIV/AIDS in Africa

 Elizabeth Mataka, United Nations Secretary General's Special Envoy for AIDS in Africa:

“We are no longer fatalistic about HIV and AIDS. There is hope.”

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Will this website be used by PLWHIV in Zambia? - I think NOT.

I think you are going to have to do quite a bit in making this website far much more simplified, if at all you are going to get much out of the Zambian persons living with HIV and the general public as whole. For people like me that have been privileged to have walked the corridors of tertiary education, it is easy to follow. But I doubt that that is the same for the ordinary Zambians, among other ordinary nationals across the continent, whose interests Madam Mataka serves.

Please allow me to rephrase my wording. As opposed to using the phrase "…ordinary Zambians…" let me replace that with, an even longer one, "…an ordinary Zambian person living with HIV that has come out in the open about their positive status…”. In so rephrasing, I want to make particular reference to those positive persons that constitute support groups of persons living with HIV. The same support groups formed by the Network of Zambian People Living with HIV (NZP+) that are organizational members (the support groups that is) of the Treatment Advocacy & Literacy Campaign (TALC) and their individual members who also happen to be TALC volunteers run the numerous activities of TALC country wide. These are done in the various provincial hubs that have so far been established in 7 out of the 9 provinces of the country. Getting back, I make special reference to those persons that have had the courage to publicly come out with their status and get involved in the fight against HIV by encouraging others to do the same. I cite, as examples, the many people that I have come across at TALC and during my 3 years as a volunteer-paralegal with the Zambia AIDS Law Research & Advocacy Network (ZARAN).

Please do not misquote me. I do not, in anyway, wish to demean or defame anybody by so asserting. However, I wish to express my opinion on matters that affect these courageous groups of people that many times are unable to express themselves. And even when they do express themselves, no one ever bothers to hear them out! Generally speaking, it is no secret that the bulk of these people are either illiterate if not of significantly low levels of education, so much so that their contribution towards the fight against HIV does not go too far beyond being used by local nongovernmental organizations and like stakeholders as tools for grant proposals to foreign donors. They are also, in most cases, used as participants in researches that go a long way in ensuring sustained funding for those local nongovernmental organizations and like stakeholders that I have herein spoken of (all with a view to ensuring the sustainability of that clique).

Of course we speak of Greater Involvement of People Living with HIV (GIPA) and Meaningful Involvement of People Living with HIV (MIPA) but, to what extent are these people actually participating in the fight? Look at the National AIDS Council (NAC) structure e.g. that is filled with highly educated and affluent professionals that even though they too might be HIV positive, their status and corresponding immune system is nothing to bother them owing to their standing in life which enables them to ensure that they live healthy lives through having a piece of mind, good nutrition, ready access to quality health care and the likes.

Finally and in drawing to a close, I would like to bring to your attention the great works of Stephen Lewis, the former UN special Envoy to Africa on AIDS. He, in my opinion, had a direct connection with the people I have talked about. In Zambia, he would visit them in their support groups, a situation which I have observed to be rare with Madam Mataka. In my view therefore, this website might even negatively serve to further distance her from them. I would urge that ways and means be found to ensure that there be effective communication between these people, their corresponding marginalized groups and with her. For mind you she is after all their envoy and hence the great need that there be a two way kind of communication.

I am with TALC today transforming issues into policy, tomorrow I might be with NIPA teaching law and later with UNZA researching…Who then will speak for these people? They can only do it for themselves! I hope I have not said too much and that my points are clear. In the event that I have not made myself clear enough, I suggest we sit down and discuss these issues in greater detail.

Thank You.

- Daniel Libati

Comments

Thank you for the Dialogue

Dear Daniel,

Thank you for your comment and I am happy the dialogue cleared issues.
I look forward to working with you.
 

Thanks for the correcting the misconception!

Good day to you Mrs. Mataka.

Firstly, I would like to most sincerely thank you for clearing what would now appear to have been a misconception on my part, with regards to your role as UN special envoy on HIV/AIDS to Africa. I now fully understand your role to be that relating to the whole of Africa, and not Zambia alone. Hence, my suggestion that you take time to visit the support groups of persons living with HIV would not only be something impossible, but that would entail you doing the work that activists like myself and organizations such as TALC are supposed to do and be doing. Lastly, I look forward to bringing to your attention the issues that affect the persons living with or affected by HIV/AIDS at the grassroots so as to better feed your advocacy voice for the benefit of the interests of those persons we all serve. Thank you.

Thank you Daniel

Thank you Daniel for your obviously heart felt and genuine concerns about whether this website will be useful to ‘ordinary Zambians’ who are living with HIV. You have also highlighted your fear that this website might alienate me from interacting more closely with communities in Zambia.

Let me start off by responding to your first concern. You are right in noting that the majority of such Zambians are unable to access this website, or indeed may find it confusing, but it is important that we must consider the reasons why. Firstly, internet access is a problem across the continent and indeed even where it is present - it is often slow and unreliable. Secondly, few places in Africa have developed an internet culture. Lastly, and most sadly, illiteracy on the continent is prominent. Even with these challenges in mind, it is important that we do not throw the baby out with the bath water. Websites in Africa can be extremely powerful in creating dialogue and maintaining communication. The example in mind is the launch of the social network - Facebook in Swahili – obviously in response to a mushrooming internet culture in East Africa.

Therefore, there is still a lot to be said about the growing power of websites. That is why in designing my website we were mindful of the fact that many Non-Governmental Organisations and Community Based Organisations across the continent, who work directly with communities affected by HIV, are in a position to access the internet. For example - persons such as yourself in the Treatment, Advocacy and Literacy Campaign as you earlier mentioned. But I was careful not to include data on the website that takes time to download, like pdfs and videos, so that more people with slower connections can view the website with few problems.

This website was designed for a very broad audience with the main intent of lending my advocacy voice to how viewer’s find relevant to their setting, whether they be from NGO’s or individuals not affiliated to any particular organisation. But in this respect it is essential to note that I rely on different networks to voice issues that I can raise at various levels of leadership. For instance, in this correspondence you think that the number of PLWHIV involved in decision making bodies like National AIDS councils or the NGOs is pathetic – a valid point that I can table in various High Level Meetings. You also raise the critical point that some NGOs in the response do not have the interests of PLWHIV in mind and are merely fronts for milking aid – another crucial point. That is why I advocate that all assistance must be publicly accounted for whilst building the capacity of people to expose such self serving NGOs and hold them accountable to fulfilling their goals and objectives.

To respond to your last point on your fear that this website will distance me from communities that cannot access the internet, I would like to reassure you that this website is not a substitute for such activities. It is merely an addition. I am pleased that I can have this conversation with you and I value the inputs and insight that you have offered me. This would have been a lot more difficult without this website. Once again, thank you for your comments.

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